Sharing research data enables valuable information and knowledge to be accessible to more scientists, potentially accelerating their work and the resulting benefit to public health.
The three Zika consortia – ZikaPLAN, ZIKAlliance, and ZikAction – are working together to:
- ensure harmonization of protocols and standardization of tools for the multicentre pregnant women and children cohort studies,
- conduct data sharing within the three consortia and provide a roadmap towards wider data sharing, including a specification or ‘cahier des charges’ of the specific requirements and considerations for future data sharing with the scientific community.
Within the three European Union-funded consortia, core data will be shared in real time as a proof-of-concept. Beyond that, the group will work towards data sharing with the scientific community at large – specifically with other large cohort initiatives (for example funded by the NIH or CDC).
A governance structure for the clinical observational studies, including the group leaders of the three consortia and other stakeholders, will be instituted and meet regularly to discuss progress of recruitment.
- Harmonize the protocols and standardize the tools for data capture and data management,
- Set up joint harmonized platforms for clinical research,
- Establish principles of governance for a joint virtual biobanking platform,
- Share data in real time in the collaborative environment of the three EC-funded consortia,
- Prepare for sharing data with the scientific community and public health officials.
Group leader: Prof. Ricardo Ximenes, Universidade de Pernambuco
- Umeå University
- London School of Hygiene & Tropical Medicine
- University of Oxford