Sharing research data enables valuable information and knowledge to be accessible to more scientists, potentially accelerating their work and the resulting benefit to public health.

Overall Objectives

The three Zika consortia – ZikaPLAN, ZIKAlliance, and ZikAction – are working together to:

  • ensure harmonization of protocols and standardization of tools for the multicentre pregnant women and children cohort studies,
  • conduct data sharing within the three consortia and provide a roadmap towards wider data sharing, including a specification or ‘cahier des charges’ of the specific requirements and considerations for future data sharing with the scientific community.

Within the three European Union-funded consortia, core data will be shared in real time as a proof-of-concept. Beyond that, the group will work towards data sharing with the scientific community at large – specifically with other large cohort initiatives (for example funded by the NIH or CDC).

A governance structure for the clinical observational studies, including the group leaders of the three consortia and other stakeholders, will be instituted and meet regularly to discuss progress of recruitment.

Specific Objectives

  • Harmonize the protocols and standardize the tools for data capture and data management,
  • Set up joint harmonized platforms for clinical research,
  • Establish principles of governance for a joint virtual biobanking platform,
  • Share data in real time in the collaborative environment of the three EC-funded consortia,
  • Prepare for sharing data with the scientific community and public health officials.

Participating Organisations

Group leader: Prof. Ricardo Ximenes, Universidade de Pernambuco

  • Umeå University
  • London School of Hygiene & Tropical Medicine
  • University of Oxford